Community Collective Advocacy: November Newsletter

Due to staff illness, we are unfortunately again unable to provide a full newsletter this month.  
This is a shorter email newsletter with information about AdvoCard activities and things that we’re involved with.  

In this newsletter: 

  • Edinburgh Community Voices – November meeting
  • Side Effects Conversations Meeting – Tuesday 12th November
  • Scotland’s Second National Action Plan for Human Rights – Consultation
  • A&E | All & Equal – Emergency Card

Edinburgh Community Voices – Wednesday 6th November
The next meeting will be on Wednesday 6th November, 2- 4pm at AdvoCard, 332 Leith Walk, EH6 5BR.   
Edinburgh Community Voices is an open meeting for anyone who has lived experience to come along and discuss mental health and services in Edinburgh.  Tea, coffee and biscuits are provided. If you’ve not been before and would like to find out more, you can ring us on 0131 554 5307 or email [email protected]

Side Effects Conversations – Let’s Get Side Effects on the Agenda, Tuesday 12th November

What do you think needs to be done to address the issue of mental health medication side effects? 
– What should GPs and psychiatrists be doing differently?  
– What information do you need about medication?
– What support do you need?  
– What else should be happening?  What else needs to change?
Join us for our first Side Effects Conversations meeting to talk about side effects and let us know what you think.  You don’t have to speak if you don’t want to, we will have post-it notes you can write your thoughts on. 
Please note: this meeting is for people in Edinburgh who have lived experience of mental health issues. 
Tuesday 12th November 1 – 3.30pm 
Out of the Blue Drill Hall, 36 Dalmeny Street Edinburgh EH6 8RG
Lunch (soup and rolls) will be included from 1 – 1.30pm.  
If you’d like to attend, please contact Becky at AdvoCard to book a space – 0131 554 5307, [email protected]
If you are not able to make the meeting, we are hoping to hold more Side Effects Conversations meetings in the future – please get in touch as above to let us know if you would be interested in coming to another meeting.  

We’re aware that some people find it difficult to get to meetings or may not feel comfortable talking about issues like these at a meeting.  We want to include as many people in the conversation as possible.  If you would like to take part but a meeting is not for you, please contact Becky as above and we’ll see what we can do to include you in the conversation another way, for instance getting your views by email.  

Towards the end of 2018, Edinburgh Community Voices carried out some peer research to hear from people about their experiences of side effects of mental health medication and treatment and support for physical health issues.
We carried out this peer research to hear from people about their experiences, to get these down on paper, to identify any common issues, and to hear from them about what they think needs to be done to address the issues raised.

We published the reports from the peer research in the summer.
You can read the reports, and find out more, here:

Experiences of Side Effects of Mental Health Medication:

Experiences of Treatment and Support for Physical Health Issues:

Scotland’s Second National Action Plan for Human Rights -Consultation The Scottish Human Rights Commission want to hear people’s views on the second National Action Plan for Mental Health.  
Mental health, physical health and social security are included in this, so it might be something that you are interested in responding to. 
More information is below.  You can respond individually.  Or, if you would be interested in taking part in a joint Edinburgh Community Voices response, please contact Becky – [email protected], 0131 554 5307.

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Dear colleague

We would like to hear your views on Scotland’s second National Action Plan for Human Rights (SNAP 2).

SNAP 2013 – 2017 was Scotland’s first National Action Plan for Human Rights. SNAP was independently evaluated in 2018.

During 2017, over 1,500 people took part in a National Participation Process to inform the future of SNAP. From this work, people identified 25 key human rights themes and some possible actions for SNAP 2.  Since July 2018, a Development Working Group from across civil society and the public sector has been working to develop SNAP 2 in more detail, supported by the Scottish Human Rights Commission and an independent facilitator.

The SNAP Development Working Group has now produced a set of draft proposals and would really like your views on:

·         The SNAP 2 issues that have been identified across 25 themes;

·     The 60+ proposed actions for SNAP 2;

·     How your community could support and be involved in SNAP 2; and

·      An organisation, governance and resourcing model for SNAP 2.

You can share your views by Monday 16 December 2019:

·        Online via survey monkey  –

·     By email to [email protected]

Read our privacy statement about how we will store and use your data.

We are currently developing BSL and Easy Read versions of this information. Please let us know if you would like us to send these to you.

Please also let us know if you need this information in a different format.

Email: [email protected]

Phone: 0131 297 5750

BSL users can contact us by using contactSCOTLAND-BSL

A&E | All & Equal – Emergency Card
  Would you like to have an Emergency Card? – An Emergency Card can help you get across your needs and wishes to the nurses, doctors and other staff if you ever need to go to the Emergency Department (A&E). On the card there is space for you to write three things that you would want staff to know and three things that matter to you about your care. You can fill in the card by yourself or with help from somebody else. It can be folded to credit card size so that it can fit in your wallet and be there if you need to use it. The Emergency Card was created for people with lived experience of mental health issues. However, it doesn’t say anything about mental health on it, you don’t have to write anything about your mental health on it and anyone can use it. We have put together some guidance to help you decide if you would like to have an Emergency Card and to give you some ideas for things to include. If you would like an Emergency Card and a copy of the guidance, or have any questions, please contact Becky –   0131 554 5307, [email protected]
Background to the Emergency Card 
In 2015 – 2016 we ran a peer research project called A&E | All & Equal where we heard from people with lived experience of mental health issues about experiences they had had at the Emergency Departments at the Royal Infirmary of Edinburgh (RIE) and St John’s Hospital, Livingston. One of the issues that came up was that when you’re in distress or are feeling anxious, it can be difficult to communicate with the staff in the Emergency Department, for instance if you have any wishes, needs or other information that you want staff to listen to and take into account. We developed the Emergency Card together with people with lived experience of mental health issues, the Emergency Department (A&E) at the Royal Infirmary of Edinburgh and the Navigator Project.   
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Best wishes, 
Becky and Patricia